What is Cystic Fibrosis (CF)?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that:
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.
For more information, please visit the Cystic Fibrosis Foundation website at www.cff.org
How do I get involved?
Please check out our Support CF Initiative link in the CF Friends Menu to learn about ways to donate and volunteer to help the future of those with Cystic Fibrosis.
Why was CF Friends created?
Please visit the About Us link under the CF Friends Menu.
What is the money raised by CF Friends used for?100% of the proceeds raised by CF Friends is donated to the Cystic Fibrosis Foundation for future research.
What is the Cystic Fibrosis Foundation (CFF)?
The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind. It has received a four-star rating for sound fiscal management from Charity Navigator, the largest independent charity evaluator in the United States and is an accredited charity of the Better Business Bureau's Wise Giving Alliance.For more information, visit their website at www.cff.org/aboutCFFoundation/
What other events does CF Friends host during the year?
During the Spring, CF Friends recruits teen and tween volunteers to be waitstaff in community establishments collecting tips to be donated to CFF.This year the events raised nearly $10,000 in four nights.
August 1st, 2009 will celebrate the 3rd annual Summer Roses Soiree hosted at the home of Gary and Melanie DiNicola (parents of Tiffani, a 13 year old living with CF).
How much money has CF Friends raised since its inception?
CF Friends has raised over $300,000 throughout the last three years from several Connecticut events including:
Ride for the Roses
Summer Roses Soiree
Great Strides Walk-a-Thon
Wiffle Ball Tournements
I am having trouble reading your website, where can I get more information?
Who are Trisha Braumann and Melanie DiNicola?
Lifelong friends, Trisha Braumann and Melanie DiNicola are co-founders of CF Friends. Melanie's daughter Tiffani was diagnosed with CF in 2006 at 10 years old. Trisha has stood by the DiNicola's dedicating and recruiting people to the cause, and helping to donate money and time for the future of people living with Cystic Fibrosis.
Where can I buy tickets for the Ride for the Roses Motorcycle Poker Run?
Tickets will be sold in advance at three Old Glory locations, Middletown, North Haven and Old Saybrook. Visit their website at www.oldglory.com
Tickets will also be available on the day of the event from 10am-11am at Knights of Columbus in Guilford.
What prizes will be given away at the Poker Run?
Prizes vary on donations from local vendors and community volunteers. Prizes in past events have included ipods, restaurant certificates, tattoo certificates, Harley Davidson certificates, T-shirts, Jewlery, etc.
Are businesses publicized after contributing to the cause?
Is the Poker Run route the same as previous years?
The poker route is always changing to accommodate new business participation and traveling accessibility. Please check our latest route information on the 2009 Poker Run link in the Main Menu.